European Organisation for Rare Diseases
EURORDIS-Rare Diseases Europe (EURORDIS) is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases that promotes research on rare diseases and commercial development of orphan drugs. EURORDIS is dedicated to improving the quality of life of all people living with rare diseases in Europe.
Source: Wikipedia — European Organisation for Rare Diseases (CC BY-SA 4.0)