List of rare disease organisations

This is a list of non-profit organisations working in the area of rare diseases. == International == Care-For-Rare Foundation ICD coding for rare diseases International Coalition of Organizations Supporting Endocrine Patients (ICOSEP) Rare Diseases International (RDI) International Conference on Rare Diseases & Orphan Drugs (ICORD) NGO Committee for Rare Diseases Global Commission to End the Diagnostic Odyssey for Children Rare Disease Day Asia Pacific Alliance of Rare Disease Organisations (APARDO) International Rare Diseases Research Consortium (IRDiRC) Orphanet RareConnect APEC LSIF Rare Disease Network Indo US Organization for Rare Diseases (IndoUSrare) RareGen Youth Network (RareGen) == Africa == Foundation for Neuromuscular Support Nigeria Rare Diseases Ghana Hemophilia Foundation of Nigeria Rare Disease Nigeria Cardiac Community == Asia == Organization for Rare Diseases India Pompe Foundation India Taiwan Foundation for Rare Disorders (TFRD) Hong Kong Alliance for Rare Diseases (HKARD) Illness Challenge Foundation (ICF) China-Dolls Center for Rare Disorders (CCRD) Indian Organisation For Rare Diseases == Europe == European Organisation for Rare Diseases (EURORDIS) ERA-Net for Research Programmes on Rare Diseases (E-Rare) European Union Committee of Experts on Rare Diseases (EUCERD) INNOVCare RD-Connect (defunct) European Platform for Rare Disease Registries (EPIRARE) The World Association of Orphan Diseases (WAO(R)D) The World Association of Cured Rare Diseases (WACRD) == Belgium == Sciensano: Rare diseases Rare Disease Day Belgium Rare Diseases Belgium == Germany == Care-For-Rare Foundation == United Kingdom == Niemann-Pick UK Rare Disease UK Rare Autoinflammatory Conditions Community - UK The Aarskog Foundation == United States == The National Organization for Rare Disorders (NORD) was established in 1983 by individuals and families with rare diseases.

Source: Wikipedia — List of rare disease organisations (CC BY-SA 4.0)

List of rare disease organisations

This is a list of non-profit organisations working in the area of rare diseases. == International == Care-For-Rare Foundation ICD coding for rare diseases International Coalition of Organizations Supporting Endocrine Patients (ICOSEP) Rare Diseases International (RDI) International Conference on Rare Diseases & Orphan Drugs (ICORD) NGO Committee for Rare Diseases Global Commission to End the Diagnostic Odyssey for Children Rare Disease Day Asia Pacific Alliance of Rare Disease Organisations (APARDO) International Rare Diseases Research Consortium (IRDiRC) Orphanet RareConnect APEC LSIF Rare Disease Network Indo US Organization for Rare Diseases (IndoUSrare) RareGen Youth Network (RareGen) == Africa == Foundation for Neuromuscular Support Nigeria Rare Diseases Ghana Hemophilia Foundation of Nigeria Rare Disease Nigeria Cardiac Community == Asia == Organization for Rare Diseases India Pompe Foundation India Taiwan Foundation for Rare Disorders (TFRD) Hong Kong Alliance for Rare Diseases (HKARD) Illness Challenge Foundation (ICF) China-Dolls Center for Rare Disorders (CCRD) Indian Organisation For Rare Diseases == Europe == European Organisation for Rare Diseases (EURORDIS) ERA-Net for Research Programmes on Rare Diseases (E-Rare) European Union Committee of Experts on Rare Diseases (EUCERD) INNOVCare RD-Connect (defunct) European Platform for Rare Disease Registries (EPIRARE) The World Association of Orphan Diseases (WAO(R)D) The World Association of Cured Rare Diseases (WACRD) == Belgium == Sciensano: Rare diseases Rare Disease Day Belgium Rare Diseases Belgium == Germany == Care-For-Rare Foundation == United Kingdom == Niemann-Pick UK Rare Disease UK Rare Autoinflammatory Conditions Community - UK The Aarskog Foundation == United States == The National Organization for Rare Disorders (NORD) was established in 1983 by individuals and families with rare diseases.

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Source: Wikipedia "List of rare disease organisations" · CC BY-SA 4.0

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