National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD) is a nonprofit organization based in Connecticut, aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers. It was founded in 1983 by Abbey Meyers, along with individuals and rare diseases leaders of rare disease support groups, and it is a 501(c)(3) tax exempt organization.

Source: Wikipedia — National Organization for Rare Disorders (CC BY-SA 4.0)